Data sharing with the NHS

About data sharing with the NHS

The Amaze Family Support Service is funded by the NHS, this includes Amaze NDP Family Training and Navigation Service, Face 2 Face and Amazing Futures. To enable the NHS to monitor the service and its impact on children and young people, they ask us to share anonymised information about who is accessing our service.

Parent Carers: If you access one of these services, we will ask if you agree /or your young person agrees to us sharing the data below. Your and your child’s name would not be included.

  • your postcode
  • your child/young person’s date of birth
  • your child/young person’s GP practice
  • your child/young person’s gender
  • whether your child/young person’s gender is the same as assigned at birth
  • your child/young person’s ethnicity
  • the primary reason that you are accessing the service, such as your child’s autism or another neurodevelopmental condition

Young People: If you access our Young People Engagement service, we will ask if you agree to us sharing the data below. Your name would not be included.

Below are the personal details that we share:

  • your postcode
  • your date of birth
  • your GP practice
  • your gender
  • whether your gender is the same as the gender assigned at birth
  • your ethnicity
  • the main reason you are accessing Amaze

In addition, we would provide details of how long you were supported by our service and the type of contacts you have with us (no information about what was discussed at these contacts is passed on) and the reason for ending support with us.

Who manages the information shared with the NHS?

The information collected about you/your young person is managed by NHS Digital, the national provider of information, data and IT systems in health and social care. The role of NHS Digital is to ensure that high quality information is used appropriately to improve patient care. It publishes key statistics and shares information to support important research and commissioning.

What is the data used for?

This is part of a national strategy called the Mental Health Services Data Set (MHSDS) which aims to deliver nationally consistent and comparable person-based information for children, young people and adults who are in contact with mental health or learning disability services. The data collected is passed to NHS Digital and supports evidence-based clinical practice and helps the NHS to demonstrate improved outcomes. It is also used to inform service improvements and monitor service performance and outcomes.

Do I have to agree to this so that I can access your service?

No, you can of course still access our service if you do not consent, however, so that we can evidence the work we are doing we do appreciate you considering this.

How do I find out more?

If you have any queries about what NHS Digital does with your information or would like to know more please get in touch:

If you would like to know more about what Amaze does with your data, please read our Privacy Policy or contact us on info@amazesussex.org.uk.

*Updated November 2023

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