NDP Family Training and Navigation Service

Brighton & Hove NDP Family Training and Navigation Service

Support at each stage along the neurodevelopmental pathway to help families manage the challenges that children and young people face.

Mum with arm round two childrenWhat is the NDP (Neurodevelopmental Pathway)?

The NDP describes the different steps that a child or young person goes through from referral to the diagnosis of a neurodevelopmental condition.

In Brighton & Hove, the conditions currently covered by the NDP are Autistic Spectrum Condition (ASC), Attention Deficit Hyperactivity Disorder (ADHD), and Tics/Tourette Syndrome.

What is the Brighton & Hove NDP Family Training and Navigation Service?

The NDP Family Training and Navigation Service provides support at each stage along the neurodevelopmental pathway to help families support children and young people with the challenges they face.

Brighton & Hove CCG (Clinical Commissioning Group) commission Amaze to coordinate this service for our local parent carers.  It complements a range of NDP services and other support across health, education and social care within the city.

What kind of support will we get?

There are two parts to the service:

  • The Navigation Service – ensuring families have access to information, and can find and take up available support appropriate to their needs and their stage within the NDP. This might be, for example, through giving parent carers information about support networks and resources on the neurodevelopmental conditions
  • The Family Training Service – identifying and providing a programme of training, family education and support, produced and delivered by expert parents, individuals with lived experience, and professionals. For instance, we might offer training to support parent carers while their child or young person is waiting for an assessment, or post diagnosis if a neurodevelopmental condition has not been diagnosed, but traits have been identified.

The service does not provide crisis support and it is not an ongoing keyworker-style service.

It is different to our existing Amaze SENDIASS service where parent carers and young people with SEND can refer themselves directly.  SENDIASS provides information, advice and support on education, health, social care and any other issues related to SEND. Read more on the SENDIASS Advice Line.

Who can use the service?

Your child does not need to have a diagnosis to get support and life does not need to have become difficult.

The service is open to parent carers of children or young people under 18 who are registered with a Brighton & Hove GP and/or residents of Brighton & Hove and at one of these stages on the neurodevelopmental pathway for assessment for Autism, ADHD, or Tics/Tourette Syndrome.

  • At the point a referral has been made to Seaside View Child Development Centre or CAMHS to request an assessment
  • When the assessment has been confirmed, and while you are waiting for your first appointment with Seaside View or CAMHS
  • Between stages of assessment
  • At or around the time of diagnosis
  • At or around the time of non-diagnosis where needs and traits are identified but your child or young person does not reach the threshold for diagnosis

The service is also available post diagnosis, for families who:

  • want more understanding about living with a neurodevelopmental condition
  • need information on specific aspects of supporting a child or young person’s learning and development
  • are at times of change and transition such as between different stages of education or teens and approaching adulthood

How can we get a referral?

Access to the service is via a professional working with your child or young person. This could be through local education, health or social care services.

Any of the following Brighton & Hove services can refer your child/young person.

  • Seaside View Child Development Centre
  • CAMHS (Child Adolescent Mental Health Service)
  • Your GP practice
  • Your health visitor or school nurse
  • Your child’s Children’s Centre
  • Your child or young person’s nursery/school/college
  • BHISS (Brighton & Hove Inclusion Support Service)
  • Ethnic Minority Achievement Service (EMAS)
  • Front Door for Families and Integrated Team for Families
  • Social Care Services
Can I refer myself?

The NDP Family Training and Navigation Service is only accessible through a referral by a professional working with your family.

If you feel your need for the service is high but you do not have a professional who you feel understands that and can make this referral for you, please contact us by email on NDP@amazesussex.org.uk  and we will try to help you work out who to ask.

How will you contact me?
We will contact you by phone or email. This may be a one-off contact for signposting, or involve short term follow up to match you to relevant training.

Other support

Amaze offers a range of different services for children and young people with additional needs and their families across Sussex including an advice line, workshops, groups and disability benefits support. Find out about Amaze’s services.

Our Face to Face befriending service is a peer-to-peer support service offering families emotional support around the time of diagnosis or new challenges. Volunteers, who are all parent carers themselves, are trained to become befrienders. Face to Face runs groups including a Dad’s Group. Find out more about Amaze Face 2 Face befriending.

You can find out about other local SEND services on Brighton & Hove’s Local Offer. The Local Offer is the council’s online directory of local services for families of children with SEND.

Further information

Autism

Videos

Written resources

Parent support groups

  • mASCot – Brighton & Hove support group for families who have autistic children, or children with autistic traits
  • Brighton Pebbles – a Facebook group for parents and carers of children with any disability, especially those who find it difficult to access mainstream activities, for instance, those with severe autism or behaviour that challenges
  • Amaze Face 2 Face autism group – for parents of children under 8 with a diagnosis of ASC, or awaiting diagnosis
ADHD

Videos

Written resources

Parent support groups

  • ADHD Aware – a peer support group for Brighton & Hove families who have a child with ADHD, or ADHD traits. They have a Facebook group called Brighton Parents of Children and Young People with ADHD. Parents meet on the second Tuesday of every month, between 7-9pm.
  • Brighton Pebbles – a Facebook group for parents and carers of children with any disability, especially those who find it difficult to access mainstream activities, for instance, those with severe autism or behaviour that challenges

Tics/Tourette syndrome

Videos

Written resources

resources

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