Carers Rights Day 2021

It’s Carers Rights Day on 25 November, and this year the campaign focuses on the rights that unpaid carers have. We’ve found some staggering statistics on the Amaze Compass West Sussex database, which shows just how hard parent carers on the Compass are working to look after their child or young person with additional needs or disabilities.

How do I find out more about my rights as an unpaid carer?

A great place to start is our info and advice page, where you can find out more information and factsheets about topics relevant to you. You can also find out about Amaze’s parent-to-parent support groups.

Registering as a parent carer with Amaze gives you access to our bi-monthly newsletter, which is packed with information about local SEND services and support. As well as:

  • Details about services and support in your area
  • Input to surveys or consultations about local SEND services

Join your local Parent Carer Forum

A parent carer forum is a group of parents and carers of children with special educational needs or disabilities who work together with local authorities and health services to improve the way services are planned and delivered for families.

Brighton & Hove – Parent and Carers’ Council (PaCC) 

East Sussex  – East Sussex Parent Carer Forum 

West Sussex – West Sussex Parent Carer Forum

 Events and workshops

East Sussex Care for the Carers has a great lineup of rights-focused workshops on Carers Rights Day (25 November), including Caring for your future. Later on in November and December, Amaze is running a host of workshops around several important topics, like How to Claim DLA or Personal Independence Payments (PIP).

The Carers Centre in Brighton is running an in-person Carers Rights Day Event on 25 November at St Augustine’s Arts and Events Centre, Stanford Avenue BN1 6EA. With free tea, coffee and cake, information talks, NHS Roadshow and a complimentary goody bag for all attendees.

Carers Support West Sussex has organised a host of helpful workshops, including ‘The Care Act & Carers Rights – Unpacking the Jargon‘ for Carers Rights Day, 25 November.

Further support

Brighton & Hove

The Carers Centre

Carers Card


East Sussex

Carers Card

Care for the Carers


West Sussex:

Carers Support West Sussex

Reaching Families

Carer Discount Card 

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