Amaze report on the impact of the pandemic on parent carers

Earlier this year, Amaze won some funding from the NHS England (NHSE) Think Carer strand to evaluate the impact of the pandemic on parent carers. NHSE selected other organisations across the country to look at how Covid-19 affected other groups of carers and they are in the process of pulling all the findings together for national publication. But NHSE has said we can share our findings with partners locally now.  

We wanted to find out:  

  • How the pandemic most impacted you – parent carers and their child or young person with SEND  
  • If services reached out to them to you to ask what they needed, or offer support 
  • If services were available/accessible during the pandemic 
  • To specifically ask about perceived accessibility and take up of the Covid vaccines 
  • How much you felt your views had been sought, or listened to, throughout 
  • If families liked how services developed their digital offer 
  • What more Amaze, or other services, could have done to help you during the pandemic and going forwards
  • What we can learn from the experience that could help improve things in the future for you and your children and young people with SEND. 

Thank you to all the parents who contributed their views. 

We have created two reports – one short and one longer (containing a lot of useful in-depth analysis and the full quotes provided by parents).  

SUMMARY report on impact of pandemic on parent carers NHSE 

FULL report on impact of pandemic on parent carers NHSE

Key findings

The key findings were that parent carers are exhausted from the added caring pressures of the last two years, and not enough respite was, nor continues to be, provided. Parent carers became more isolated and we found that levels of anxiety and other mental health conditions have worsened both for parent carers and for their child(ren), with long delays to assessments and treatments.  

We make many suggestions in our report about how organisations, including Amaze and others working to support families with disabled children, could have provided more outreach and tailored support throughout the pandemic. We also include many ideas from parent carers for future provision and planning.

We have asked for the report to be discussed by partners and, where applicable, its findings be considered/incorporated into their relevant SEND and carer strategies and plans. 

Share this article
Translate »